Engagement Examples

We aim to have Patient and Public Engagement (PPE) embedded into our programmes of work wherever possible. The following two examples show PPE in practice within the Clinical Networks

PPE in ‘Life After Stroke Commissioning Guidance’

The purpose of the Life after Stroke guidance is to assist and support commissioners to ensure that all elements of the stroke clinical pathway are designed and managed in a way to help people get back to living full and active lives and reintegrating with society. Public involvement was crucial in getting this perspective and understanding of not only the moral but the economic case for helping and supporting people to maintain their own health and wellbeing and thus continue to provide a valuable social and economic resource to the community.

The document describes how the involvement of people living with the effects of stroke, their carers and members of the public with an interest in improving cardiovascular care were essential in designing the stroke clinical pathway, providing evidence of the impact of having a stroke, gaps in local services and real life examples of best practice.

PPE in ‘Transition from Children’s to Adult Services Guidance’

The previous Transition Clinical Advisory Group developed ‘Transition Best Practice Pathways Guidance’ for three long term conditions – asthma, epilepsy and diabetes. We engaged directly and indirectly with over 50 young people, families, carers and many voluntary organisations in order to develop this guidance. Their feedback has been incorporated into the recommendations of the best practice pathways and highlighted throughout the document.

The document describes the great benefit of this engagement in gaining first-hand insight from patient’s experiences of transitioning from children’s to adult services with long term conditions. Young people were able to identify solutions which were achievable and based on real examples.